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The Spina Bifida Association.
Description: Started in 1973, the Spina Bifida Association of Minnesota is a non-profit organization made up of volunteers. Our purpose is to increase awareness about Spina Bifida and enhance the lives of those affected. Research has shown that genetics play a role in Spina Bifida. The Spina Bifida Genetics Research Project is enrolling mothers in a study to determine if genetic variations in folic acid metabolism account for an increased risk of having a child with Spina Bifida. From the results of the study, it may be possible to develop a test that can identify at-risk women prior to conception. They could then be treated by their physicians the same way as women who have had a child with Spina Bifida - with high dose folic acid supplementation. Participants in the study are asked to complete a brief online survey and provide a DNA sample using a simple at-home saliva collection kit. Once the project is complete, participants will receive a complimentary test for a personalized genetic report. For more information and to enroll in the SB Genetics Research Project, please go to www.sbgenetics.org and select ENROLL. The website and survey are available in both English and Spanish. Participants also may choose to receive a $10 Target gift card or to have SB Genetics donate $10 to the Spina Bifida Association. The SB Genetics Project includes scientists from UC Berkeley, Stanford University, UC San Francisco, Children's Hospital Oakland Research Institute and VitaPath Genetics.
| Contacts: | SBAMN P.O. Box 29323 Minneapolis,MN 55429 Hotline: 651-222-6395 Email: sbamn@hotmail.com |
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| Posted: | 21 November, 2009 07:12 |
| Site Title: | Spina Bifida Association of Minnesota |
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| Category: | Health & Well-Being |
| Specialized in: |
Association
- Genetic Variations
- Minnesota
- Spina Bifida
- Vitapath Genetics
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